Molly passed at 3:30am surrounded by her loved ones! I am so proud of my friend Kristen Dunne, she is the most amazing mom to Molly, Kate and Ryan. We will still be taking donations for Molly’s family, the money will be send directly to them to use as they feel needed. My heart goes out to the Dunne’s has they find their way as they move forward!
The Purple Tortoise P.O. Box 182181 Casselberry, FL 32718 or Paypal juliewalter1976@yahoo.com
Thank you for your support and please check out the full story at http://www.facebook.com/#!/miraclesformolly) and see all the amazing "Flat Molly" pictures posted from all over the world! Molly touched so many lives!
Julie Walter
MOLLY NEEDS EXTRA PRAYERS AND POSITIVE THOUGHTS RIGHT NOW!
http://www.facebook.com/#!/miraclesformolly/posts/385731414802058
Seven year old, Molly Dunne, was diagnosed with severe Pulmonary Hypertension after collapsing on her first day of kindergarten in Sept 2010. She has had a long, difficult journey since then. A few days after she collapsed, she went into cardiac arrest and was placed on ECMO (heart-lung bypass). She was then flown from Delaware to Pittsburgh, PA and became the 2nd child in the U.S. to be placed on an artificial lung, called a Novalung. She remained on the Novalung for 25 days. During that time we learned Molly suffered a significant brain injury. We were told she may never see, walk, talk or do anything like a normal child again. We also found out that her Pulmonary Hypertension is due to Hereditary Hemorraghic Telangiectasia which is a genetic condition that causes malformations in blood vessels. She has been in rehab therapy for the past 17 months and is now walking with the help of a walker, saying a few words and most definitely sees everything around her. She has come so far. Unfortunately, her Pulmonary Hypertension has progressed. She is in heart failure and her lungs are very sick. She is not eligible for transplant and we are working with Palliative Care to try and make whatever time she has left the best it can be! Molly has an older brother Ryan, age 9, and a twin sister, Kate. Molly is dearly loved by so many. Both Pulmonary Hypertension and HHT are rare disorders and we want to get the word out to hopefully help prevent another family having to go through what we've been through.
If you would like to read more about Molly's story, feel free to visit her Caring Bridge at http://www.caringbridge.org/visit/mollydunne For more about Pulmonary Hypertension visit http://www.phassociation.org/. For more about HHT visit http://hht.org/.
All of the above is an excerpt from http://www.facebook.com/#!/miraclesformolly) PLEASE BE SURE TO FACEBOOK "LIKE" Miracles For Molly Dunne at this link.
The Purple Tortoise
My kids Jack (9) Alex (6) and Bryn (4) and I have started this new blog, The Purple Tortoise for projects and other things we want do together over this summer. The kids and I are currently making handmade bottle cap magnets featuring The Purple Tortoise. The drawing was done by Jack.
Molly and her family are friends of ours, they live in Delaware,
and we got to spend some time with them while they came to Orlando/ Disney for
Molly’s Make A Wish trip. My kids and I are going to ask for donations for
Molly’s Bucket List. Please help Molly spend some HAPPY-FUN- QUALITY time with
her family and make every moment count.
I would love to see them do as many things as they can and check off
everything on Molly’s Bucket List, to be able to live in the moment as much as
it is possible. Please help them create positive happy lasting memories together!
We are asking for donations and any donation of $10 or more you will receive
one our adorable Purple Tortoise magnets we are currently making. The money
will be collected and will go to Molly. My kids are very excited about our
project, they have hearts of gold, and I’m a proud mom! When I recently told my
kids about how sick Molly is, and about her bucket list, Alex my 6 year old ran
to his room and came back with some change (including his special $1 gold coin
he had gotten from the tooth fairy the night before) he stretched out his
little 6 year old hand said “let’s give this to Molly” melted my heart. Molly needs her Miracle!
If you would like to
help my kids collect money for Molly, please send to The Purple Tortoise/Project Molly P.O. Box 182181 Casselberry, FL 32718. Make checks out to Miracles For Molly Dunne. Thank You!
Donations, Prayers and Positive thoughts are all welcome and very much appreciated, Thank you, Julie Walter.
